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<dc:title xml:lang="fr">Activité physique adaptée, éducation thérapeutique du patient et approche socio-écologique de la santé du patient insuffisant rénal chronique : impacts systémiques sur les dynamiques identitaires des personnes atteintes de la maladie</dc:title>
<dcterms:alternative xml:lang="en">Adapted physical activity, therapeutic patient education programme, and socio-ecological approach of chronic kidney disease patients' health</dcterms:alternative>
<dc:subject xml:lang="fr">Insuffisance rénale chronique</dc:subject>
<dc:subject xml:lang="fr">Education thérapeutique du patient</dc:subject>
<dc:subject xml:lang="fr">Activité physique du patient</dc:subject>
<dc:subject xml:lang="fr">Santé socio écologique</dc:subject>
<dc:subject xml:lang="fr">Pensée complexe</dc:subject>
<dc:subject xml:lang="en">Chronickidneydisease</dc:subject>
<dc:subject xml:lang="en">Therapeutic patient education</dc:subject>
<dc:subject xml:lang="en">Adapted physical education</dc:subject>
<dc:subject xml:lang="en">Socio-ecological health</dc:subject>
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<dcterms:abstract xml:lang="fr">L’insuffisance rénale chronique (IRC) est une pathologie entraînant des complications sur la santé. Au stade terminal, le patient doit avoir recours à un traitement curatif. La qualité de vie s’en retrouve altérée et l’identité de la personne en est malmenée. L’activité physique adaptée (APA), ancrée dans un programme d’éducation thérapeutique du patient, va octroyer de nouveaux rôles. Nous nous intéressons à 10 patients IRC qui bénéficient d’un programme d’APA durant 6 mois. La pensée systémique de la santé nous permet d’évaluer les effets de cette prise en charge globale sur les dynamiques identitaires des patients. Le recours à la méthode mixte nous donne l’occasion de combiner des mesures quantitatives et qualitatives. Le programme APA se centre sur le patient qui devient acteur et prend alors possession d’une identité propre qui fluctue au même rythme que la maladie. L’APA va alors servir de support et de fil d’Ariane, comme une ligne constante dans cet état mouvant.</dcterms:abstract>
<dcterms:abstract xml:lang="en">Chronickidneydisease (CKD) leads to health complications. At the end-stage, CKD patients need to undergo curative treatment. Adapted physical activity (APA) implemented through a therapeutic patient education programme, gives them new roles. This study examines 10 CKD patients involved in an APA programme for 6 months. Systemic thinking in health enables us to evaluate the effects of global patient care on their identity dynamics. A mixed-method approach gives us the opportunity to combine quantitative and qualitative measurements. The APA programme focuses on patients who play an active role and take ownership of their own identity. Reconstruction of individual identity is continuous. It fluctuates in relation with the disease. APA acts as a support for patients, guiding them as a steady guideline through their shifting condition.</dcterms:abstract>
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